Chronic Pain

Financial effects and benefits

Many of the people we talked to had found it difficult to continue work because of their pain. Expectations and plans often had to be drastically revised, which left people feeling frustrated and disappointed (see also 'Unemployment and return to work').

Statutory sick pay is usually paid during the first 28 weeks of sickness (not for the first three days) to people who earn more than the minimum. For current rates see GOV UK.www.gov.uk/browse/benefits


Some people who had been in long term employment received full pay from their employers for the first three months they were off work, then half pay for the next three. One woman described the good sickness pay arrangements at her work while another, who had never had a paid job, explained that she was not entitled to incapacity benefit.

People who are declared medically unfit to return to work after six months may transfer to Employment and Support Allowance. For a person to qualify for Employment and Support Allowance  Work Capability Assessment needs to be carried out where you have to complete a questionnaire about how your illness or disability affects your ability to work and can include a medical assessment. For more information on Employment and Support Allowance see GOV UK.com.


People under the age of 65 who need care and attention may qualify for Disability Living Allowance -Care Component, while those over the age of 65 can claim Attendance Allowance. These benefits are not means tested and may be claimed by people who live alone, find it difficult to do domestic tasks, or look after themselves.

People under 65 who have difficulty walking can also claim Disability Living Allowance (Mobility Component). These people can also apply for a disabled badge for parking (Blue Badge Scheme). Motability is a voluntary organisation which enabled some people to run cars, which made a big difference to their lives.

Many of the people we talked to said that the process of claiming benefits had been difficult and in some cases distressing, demeaning and degrading.

People sometimes felt that they were suspected of being 'malingerers' and stressed that they really wanted to be able to work and that benefits should not be seen as 'charity'. Completing the forms could be difficult and time consuming and the medical assessments could be traumatic, although a few said it was less unpleasant than they had expected.

Some people found the focus on walking bizarre, or pointed out that people who are reluctant to focus on the worst aspect of their disabilities can be seriously disadvantaged. Many disliked having to answer questions about their ability to perform personal care and hygiene tasks.

Applications are not always successful, although several eventually succeeded after an appeal. Some suspected that that in their area benefits were never awarded until after an appeal.

Some had avoided claiming for as long as possible, using savings and hoping that the problem would resolve. They did not advise others to do the same since benefits often cannot be backdated. Many felt angry and bitter that they had found it so hard to find out what they were entitled to - several had only found out about benefits by chance, or through friends or family who worked in the system.

Several people that we talked were working but are registered disabled and told us that they were entitled to some financial help including benefits, working tax credits and mobility allowances. One woman recommended looking up information on the Internet. Others had found out about schemes through the employment agency return to work schemes.

The benefits available often change and people are recommended to check with GOV UK the DSS Benefit Enquiry Line Tel' 0800 88 2200 and Citizen's Advice Bureau.

Apart from the loss to household income, people described many other financial consequences of their illness. Prescription costs mounted up - those who used more than 4 prescriptions in three months are advised to buy prepayment certificates.

Some paid for their own medical treatment or complementary therapies (see also 'Complementary approaches'), other costs included buying special furniture and mattresses, having to take taxis, having groceries delivered, and paying for other people to do jobs in the house.

One man said he regretted having to hand back all of his credit cards. A few had calculated the cost, in terms of lost income and additional expenses, as many thousands of pounds.

Loss of income also meant that people were unable to participate fully in a social life, especially with friends who had jobs and a comparatively comfortable life. Often families and friends were generous in subsidising social events, or even in helping with bills or medical expenses.

Several people stressed that mortgage lenders and utilities companies would be likely to accept repayments over a longer period, and it was better to talk to them than take out more loans and get further into debt.

Some had needed to claim settlements because of accidents or industrial injuries. One man was able to pay off his mortgage and have a couple of good holidays, but pointed out that it could not compensate for his lost income.

Another found that when he eventually won his case he had to repay all of the benefits he had received. A woman who had claimed after an accident said that it could be more trouble than it was worth. All those who had been through litigation advised getting independent advice first.

For more information on benefits see GOV UK.

Last reviewed November 2012.

Last updated November 2012.

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